Reece has been doing really well this weekend. She was completely independent of any additional oxygen up until today, when she started having episodes of brady cardia (the slowing of the heart rate like Charlie has been having). This caused her to have her flow started back through her nose, but no big deal. Her belly did look a little swollen on Saturday (and still does), so the doctors stopped her feedings for now. We don’t want to take any chances with the problems that she’s already had with her belly!
P.S. I finally got up the courage to hold her today after my parents and Lucy’s dad came to meet the trio for the first time......Junebug met them Thursday!
LOUISE (2 lbs 6 oz)
Louise has had quite an up and down weekend. On the up side, she has come off of the ventilator, and all of her vitals have improved greatly. Her heart rate and blood pressure are much better, and her oxygen saturation is doing great (along with all of her blood work). On the down side, she had her ventricles (in her brain) tapped with a needle this morning to relieve the pressure from all of the built of spinal fluid (hydrocephalus). It’s great to see her finally more comfortable, but we couldn't’t believe that the doctor decided to do this procedure without calling us or letting us know anything beforehand. We hadn’t even decided what route we wanted to take yet (whether we go to Greenville or Duke for the shunt procedure should she need it), and we hadn’t met the neurosurgeon that tapped her this morning. After seeing Lucy’s reaction, I talked with the nurse and doctor and I don’t think that this communication breakdown will be happening again! Hyrdoceplalus is a ugly monster and we are not sure what lays ahead for Louise. We will continue to pray and we hope you all will too.
CHARLIE (2 lbs 6 oz)
Charlie has continued to be a good boy, with exception to his brady cardia episodes. The docs say that this is normal in babies his age, so we’re not stressing over it yet. They did blood work to check for infection that might be causing this, and it all came back negative. Overall, he’s doing great right now!
Sorry, we have been a little slack on the blog. Our schedule is pretty demanding right now. We have a new goal of trying to do 3 blog post a week. Thank you all for caring enough about our family to follow this journey. We truly believe in "prayer in numbers" and that is why we take the time to keep this blog alive.